Tuesday, October 13, 2026

Cancun Vacation 2/14/26 to October 2026





























 

October 13, 2026. Notes from Doctor Appointment. 17 years 9 mos

 Mallory FaceTimed for appt.  Her notes.πŸ™πŸΌπŸ™πŸΌπŸ™πŸΌ


Update from Dad’s Appointment with Dr. Kathleen Dorritie (Oncologist)

• Dad will continue with 2 more cycles (about 2 months) of his current DPD regimen:
Darzalex, Pomalyst, and dexamethasone (steroid).

• After those 2 cycles:

◦ Darzalex will continue monthly.

◦ Pomalyst will continue daily (21 days on, 1 week off).

◦ Steroids (dexamethasone) will be stopped. When this happens, Dad’s energy may dip until his body adjusts.

• January 8th: Dad is scheduled for a PET Scan.

• Good news: Dad’s Myeloma is responding well to treatment.

◦ His Kappa-Lambda Light Chain Ratio is back to normal (his Myeloma is “Kappa” type).

◦ His M-Spike has dropped from 1.0 → 0.3 since starting this treatment.

• Long term: Dad will stay on Pomalyst until the Myeloma becomes resistant, but there are other treatment options for when that time comes.

• Labs: Request Myeloma labs monthly instead of every 2 months when Dad gets treatments.

• Other medical notes:

◦ Ask PCP for a referral to Cardio-Pulmonary Rehab.

◦ Talk to Dr. Sun Scolari (cardiologist) about adjusting Lasix dosage. Dad’s lungs are clear, swelling is not significant, and kidneys are tolerating the medication, but frequent urination is bothersome.

To-Do List

1 Continue 2 more cycles of Darzalex, Pomalyst, and dexamethasone.

2 Mark January 8th PET Scan on the calendar.

3 After 2 cycles: transition to monthly Darzalex + daily Pomalyst (21 days on/1 off), stop dexamethasone.

4 Expect possible lower energy for a bit after stopping steroids.

5 Request monthly Myeloma labs during treatments.

6 Ask PCP about Cardio-Pulmonary Rehab referral.

7 Talk with Dr. Sun Scolari about Lasix dosage concerns.

Notes

• Oncologist: Kathleen Dorritie

• PA Oncology: Tina Waters

• Cardiologist: Sun Scolari

• Pulmonologist: Roy Semaan

• PCP: Dr. Hart



Sunday, February 8, 2026

Latest Plan

Update from Dad’s Appointment with Dr. Kathleen Dorritie (Oncologist)

  • Dad will continue with 2 more cycles (about 2 months) of his current DPD regimen:
    Darzalex, Pomalyst, and dexamethasone (steroid).
  • After those 2 cycles:
    • Darzalex will continue monthly.
    • Pomalyst will continue daily (21 days on, 1 week off).
    • Steroids (dexamethasone) will be stopped. When this happens, Dad’s energy may dip until his body adjusts.
  • January 8th: Dad is scheduled for a PET Scan.
  • Good news: Dad’s Myeloma is responding well to treatment.
    • His Kappa-Lambda Light Chain Ratio is back to normal (his Myeloma is “Kappa” type).
    • His M-Spike has dropped from 1.0 → 0.3 since starting this treatment.
  • Long term: Dad will stay on Pomalyst until the Myeloma becomes resistant, but there are other treatment options for when that time comes.
  • Labs: Request Myeloma labs monthly instead of every 2 months when Dad gets treatments.
  • Other medical notes:
    • Ask PCP for a referral to Cardio-Pulmonary Rehab.
    • Talk to Dr. Sun Scolari (cardiologist) about adjusting Lasix dosage. Dad’s lungs are clear, swelling is not significant, and kidneys are tolerating the medication, but frequent urination is bothersome.

To-Do List

  1. Continue 2 more cycles of Darzalex, Pomalyst, and dexamethasone.
  2. Mark January 8th PET Scan on the calendar.
  3. After 2 cycles: transition to monthly Darzalex + daily Pomalyst (21 days on/1 off), stop dexamethasone.
  4. Expect possible lower energy for a bit after stopping steroids.
  5. Request monthly Myeloma labs during treatments.
  6. Ask PCP about Cardio-Pulmonary Rehab referral.
  7. Talk with Dr. Sun Scolari about Lasix dosage concerns.

Notes

  • Oncologist: Kathleen Dorritie
  • PA Oncology: Tina Waters
  • Cardiologist: Sun Scolari
  • Pulmonologist: Roy Semaan
  • PCP: Mark Knestrick